Autism

Keep Hope Alive

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I scooch Justin over in his big comfy chair so we can snuggle, and I can hopefully reduce the rocking that might make the test he’s undergoing invalid. He smiles at me through a web of plastic, looks delightedly into my eyes as The Polar Express plays on his DVD player. It’s a favorite of […]

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Our Bond

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He runs into the house from his school bus and stops dead in his tracks as he witnesses the magic that is my living room’s winter wonderland. Every inch is hosting a light, a singing plush toy, or an animated Christmas icon, and I know his mile-wide smile is for the tradition of this spectacle, […]

Peace

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I sit back comfortably in my reclining chair, refusing an offer of coffee while accepting a copy of my son’s latest IEP with the words “transitional plan” in bold letters on top. He’s fourteen now, my boy, a freshman in high school if his school did traditional grades, which they don’t. He’s in high school. […]

Word

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He snuggles contentedly on my lap, my severely autistic nine-year-old son who loves his evening storytime with Mama. This is a ritual we started seemingly moments after he was out of the womb, this reveling in words, a sensory sanctuary for my boy as he rests securely in my arms. Justin has always loved books, […]

Disney and Universal

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It’s that time again folks- time for my post-mortem on our semi-annual Disney trip with the McCafferty clan. Spoiler alert- it went great. Just in case someone’s eyes are starting to roll in a “nice that they can afford this” way, I will send a shout out to Grandma who paid for most of this […]

Connection

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If I’d blinked I would have missed it. As it was I heard my husband frantically calling my name, and I raced into my eldest son’s bedroom, wondering what calamity had befallen us now. When my husband uses “that” tone, it’s usually a calamity. I rushed in to find this tableau spread out before me- […]

So Many Questions

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I feel his tiny teeth before I see him lock down on the soft flesh between throat and clavicle, and I try not to wince as I attempt to disengage him while carrying on a conversation with a woman with two toddlers in tow. “He’s autistic” I say after she’s come over to me in […]